{"id":688007,"date":"2022-09-22T08:10:52","date_gmt":"2022-09-22T12:10:52","guid":{"rendered":"https:\/\/www.marketnewsdesk.com\/index.php\/harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs\/"},"modified":"2022-09-22T08:10:52","modified_gmt":"2022-09-22T12:10:52","slug":"harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs","status":"publish","type":"post","link":"https:\/\/www.marketnewsdesk.com\/index.php\/harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs\/","title":{"rendered":"HARMONY BIOSCIENCES ANNOUNCES 2022 FUNDING RECIPIENTS OF PATIENTS AT THE HEART AND PROGRESS AT THE HEART AWARD PROGRAMS"},"content":{"rendered":"<div class=\"xn-newslines\">\n<p class=\"xn-distributor\">PR Newswire<\/p>\n<\/p><\/div>\n<div class=\"xn-content\">\n<p>\n        <span class=\"legendSpanClass\"><br \/>\n          <span class=\"xn-location\">PLYMOUTH MEETING, Pa.<\/span><br \/>\n        <\/span>, <span class=\"legendSpanClass\"><span class=\"xn-chron\">Sept. 22, 2022<\/span><\/span> \/PRNewswire\/ &#8212; Harmony Biosciences Holdings, Inc. (&#8220;Harmony&#8221;) (NASDAQ: HRMY), a pharmaceutical company dedicated to\u00a0developing and commercializing innovative therapies for patients with rare neurological diseases, today announced on the fourth annual World Narcolepsy Day, the funding recipients of its <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=2259439875&amp;u=https%3A%2F%2Fwww.harmonybiosciences.com%2Ffunding-programs%2Fpatients-at-the-heart%2F&amp;a=Patients+at+the+Heart\" target=\"_blank\" rel=\"nofollow noopener\">Patients at the Heart<\/a>\u00a0and <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=3827277301&amp;u=https%3A%2F%2Fwww.harmonybiosciences.com%2Ffunding-programs%2Fprogress-at-the-heart%2F&amp;a=Progress+at+the+Heart\" target=\"_blank\" rel=\"nofollow noopener\">Progress at the Heart<\/a>\u00a0award programs.<\/p>\n<div class=\"PRN_ImbeddedAssetReference\" id=\"DivAssetPlaceHolder1\">\n<p>\n          <a href=\"https:\/\/mma.prnewswire.com\/media\/1081494\/Harmony_Biosciences_Logo.html\" target=\"_blank\" rel=\"nofollow noopener\"><br \/>\n            <img decoding=\"async\" src=\"https:\/\/mma.prnewswire.com\/media\/1081494\/Harmony_Biosciences_Logo.jpg\" title=\"Harmony Biosciences logo (PRNewsfoto\/Harmony Biosciences)\" alt=\"Harmony Biosciences logo (PRNewsfoto\/Harmony Biosciences)\" \/><br \/>\n          <\/a>\n        <\/p>\n<\/p><\/div>\n<p>The Patients at the Heart program, which launched in 2019, underscores Harmony&#8217;s ongoing commitment to support the comprehensive needs of people affected by rare neurological diseases. Over the last four years, the program has awarded numerous nonprofit organizations that are working to support and address the challenges of people living with sleep disorders and rare neurological diseases who experience excessive daytime sleepiness (EDS).<\/p>\n<p>In 2021, Harmony initiated the Progress at the Heart program. This award funds innovative programs that address health disparities and inequities in rare neurological disease and sleep disorder communities. Combined with the Patients at the Heart awards, total funding for these two programs has now increased to <span class=\"xn-money\">$380,000<\/span> in over the last four years.<\/p>\n<p>&#8220;Combining empathy with innovation to improve\u00a0the lives of people living with rare neurological diseases is a mission that drives everyone at Harmony Biosciences,&#8221; said Cate McCanless, Chief Corporate Affairs Officer. &#8220;In recognition of World Narcolepsy Day, we are pleased to announce this year&#8217;s recipients of the Patients at the Heart and Progress at the Heart award programs. This diverse group of organizations have each developed new and innovative patient-centric initiatives to help address the unique needs of people living with rare neurological diseases. We look forward to the positive impact these programs will create for patients, caregivers and communities.&#8221;<\/p>\n<p>The following organizations were chosen as the 2022 Patients at the Heart award recipients:<\/p>\n<ul type=\"disc\">\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=2161183341&amp;u=https%3A%2F%2Fwww.mda.org%2F&amp;a=Muscular+Dystrophy+Association%3A\" target=\"_blank\" rel=\"nofollow noopener\">Muscular Dystrophy Association:<\/a><br \/>\n          <\/b><br \/>\n          <b> MDA Access Workshops: Access to Coverage<br \/><\/b>MDA Access Workshops are a self-paced community learning and support series focused on increasing community health literacy, empowerment, and self-advocacy. The funding will allow for the expansion of MDA Access Workshops and the addition of a new program, Access to Coverage, that will provide an overview of obtaining insurance coverage for medical equipment and assistive devices.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=4206822140&amp;u=https%3A%2F%2Fwww.hypersomniafoundation.org%2F&amp;a=Hypersomnia+Foundation\" target=\"_blank\" rel=\"nofollow noopener\">Hypersomnia Foundation<\/a><br \/>\n          <\/b><br \/>\n          <b>: #UNITE Beyond Sleepy \u2013 An Interactive Forum for Peer-to-Peer Relational Connections<br \/><\/b>Establishing the #UNITE program to foster peer-to-peer support for individuals with hypersomnia disorders to connect and share personal challenges.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=1334909541&amp;u=https%3A%2F%2Fklsfoundation.org%2F&amp;a=KLS+Foundation\" target=\"_blank\" rel=\"nofollow noopener\">KLS Foundation<\/a><br \/>\n          <\/b><br \/>\n          <b>: Strategic Communications for Awareness<br \/><\/b>Increasing outreach and communication with the Kleine-Levin Syndrome community to raise awareness of the condition, build community and support systems, and facilitate initial patient participation in medical studies. The group aims to complete these goals through the development of resources and support opportunities, website and social media updates, and improvements of their patient registry.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=2589627629&amp;u=https%3A%2F%2Fwww.pwsausa.org%2F&amp;a=Prader-Willi+Syndrome+Association+%7C+USA\" target=\"_blank\" rel=\"nofollow noopener\">Prader-Willi Syndrome Association | <span class=\"xn-location\">USA<\/span><\/a><br \/>\n          <\/b>:<b> Caregiver Retreat<br \/><\/b>This event will offer up to thirty parents\/caregivers an opportunity to attend a three-day, two-night event providing parents\/caregivers with new skills to provide care for their loved one with Prader-Willi syndrome and develop their own self-care practices, including meaningful in-person peer connections.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=2622258329&amp;u=https%3A%2F%2Fwww.pwn4pwn.org%2F&amp;a=PWN4PWN\" target=\"_blank\" rel=\"nofollow noopener\">PWN4PWN<\/a><br \/>\n          <\/b>:<b> TechSoup<br \/><\/b>Providing people living with narcolepsy or idiopathic hypersomnia six months of education in the form of webinars and forums in service to PWN4PWN&#8217;s advocacy mission.<\/li>\n<\/ul>\n<p>The following organizations and programs were chosen as the 2022 Progress at the Heart award recipients:<\/p>\n<ul type=\"disc\">\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=1562008199&amp;u=https%3A%2F%2Fworldsleepsociety.org%2F&amp;a=World+Sleep+Society\" target=\"_blank\" rel=\"nofollow noopener\">World Sleep Society<\/a><br \/>\n          <\/b><br \/>\n          <b>: Ensuring Equity in the International Sleep Medicine Exam<\/b> \u2013 <b>An Inclusionary Imperative<br \/><\/b>The World Sleep Society Sleep Medicine Examination is designed to cover many aspects of sleep science, extant practice guidelines, diagnostic nosology, presentation and associated features of sleep disorders, epidemiology of sleep disorders, clinical pharmacology, behavioral therapeutics, instrumentation, methodology, and sleep health. This funding will increase global access to the International Sleep Medicine Examination through the creation of an online testing platform and scholarships for application fees.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=734561255&amp;u=https%3A%2F%2Fsleepconsortium.org%2F&amp;a=Sleep+Consortium\" target=\"_blank\" rel=\"nofollow noopener\">Sleep Consortium<\/a><br \/>\n          <\/b><br \/>\n          <b>: Disparity Task Force Initiative<\/b><br \/>\n          <b>\u2013 An Inclusive Approach to Patient-Owned Data Collection<br \/><\/b>This initiative will create a Task Force comprised of individuals representing Black and Hispanic American communities diagnosed with various sleep disorders. The Task Force will concentrate on identifying barriers their communities face in collecting data in patient-owned platforms, consenting to data sharing practices, and understanding governance issues.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=1356515533&amp;u=https%3A%2F%2Fwww.columbiacardiology.org%2F&amp;a=Columbia+University%2C+Division+of+Cardiology\" target=\"_blank\" rel=\"nofollow noopener\"><br \/>\n              <span class=\"xn-org\">Columbia University<\/span>, Division of Cardiology<\/a><br \/>\n          <\/b><br \/>\n          <b>: &#8220;REST: Reinforcing Essentials of Sleep for Teens&#8221; in a Diverse Population of High School Students in <span class=\"xn-location\">New York City<\/span><br \/><\/b>A 12-week behavioral and educational program for high school students in the <span class=\"xn-location\">Washington Heights<\/span> community of <span class=\"xn-location\">New York City<\/span> that aims to raise awareness of the importance of healthy sleep for the prevention of cardiovascular disease and other chronic diseases.<\/p>\n<\/li>\n<li>\n          <b><br \/>\n            <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=1231729267&amp;u=https%3A%2F%2Fwww.aan.com%2F&amp;a=American+Academy+of+Neurology+(AAN)+Institute\" target=\"_blank\" rel=\"nofollow noopener\">American Academy of Neurology (AAN) Institute<\/a><br \/>\n          <\/b>:<b> Diversity Leadership Program<br \/><\/b>Diversity in the workforce is critical to cultivating trust in underrepresented communities. The Diversity Leadership Program is an intensive program that identifies, orients, and cultivates underrepresented minority neurologists into future leaders of the American Academy of Neurology and the greater field of neurology and helps to increase access to minority neurologists in communities where there is limited representation.<\/li>\n<\/ul>\n<p>Harmony&#8217;s Patients at the Heart award program supports nonprofit organizations. To receive funding, applications must focus on one or more of the following categories:<\/p>\n<ul type=\"disc\">\n<li>Programs that support persons with rare neurological diseases to live fuller, more engaged lives<\/li>\n<li>Programs that address the psychosocial challenges faced by persons with sleep disorders or rare neurological diseases who experience EDS, or their caregivers<\/li>\n<li>Programs that improve the overall support of family members of persons living with rare neurological diseases<\/li>\n<li>Creation of educational materials to increase awareness and decrease time to diagnosis of rare neurological diseases<\/li>\n<\/ul>\n<p>Harmony&#8217;s Progress at the Heart award program supports nonprofit organizations. To receive funding, applications must focus on one or more of the following categories:<\/p>\n<ul type=\"disc\">\n<li>Community Programs: People-centered, community-led programs to improve awareness and treatment in the sleep disorder and rare neurological diseases with sleep deficiencies communities and help achieve greater equality for underrepresented ethnic or other minority groups<\/li>\n<li>Education: General public and healthcare provider education and programs that increase awareness and decrease time to diagnosis of sleep disorders and rare neurological diseases with sleep deficiencies found in underrepresented ethnic or other minority groups<\/li>\n<li>Public Health: Creation of or modifications to public policies that impact underrepresented ethnic or other minority groups<\/li>\n<li>Other proposals that help achieve greater equality within rare neurological disease communities<\/li>\n<\/ul>\n<div class=\"wcag-arialevel-3\" style=\"font-size: 1.17em;font-weight: bold\" role=\"heading\">\n        <b>About Harmony\u00a0Biosciences<\/b>\u00a0<\/div>\n<p>At Harmony Biosciences, we specialize in developing and delivering treatments for rare neurological diseases that others often overlook. We believe that where empathy and innovation meet, a better life can begin for people living with neurological diseases. Established by Paragon Biosciences, LLC, in 2017 and headquartered in <span class=\"xn-location\">Plymouth Meeting, PA<\/span>, our team of experts from a wide variety of disciplines and experiences is driven by our shared conviction that innovative science translates into therapeutic possibilities for our patients, who are at the heart of everything we do. For more information, please visit <a href=\"https:\/\/c212.net\/c\/link\/?t=0&amp;l=en&amp;o=3652419-1&amp;h=1031238189&amp;u=https%3A%2F%2Fwww.harmonybiosciences.com%2F&amp;a=www.harmonybiosciences.com\" target=\"_blank\" rel=\"nofollow noopener\">www.harmonybiosciences.com<\/a>.\u00a0<\/p>\n<p>\n        <b>Harmony Biosciences Media Contact:<\/b>\u00a0<br \/>Nancy Leone\u00a0<br \/>215-891-6046\u00a0<br \/><b><u><a href=\"mailto:nleone@harmonybiosciences.com\" target=\"_blank\" rel=\"nofollow noopener\">nleone@harmonybiosciences.com<\/a><\/u><\/b>\u00a0<\/p>\n<p>\n        <b>Harmony Biosciences Investor Contact:<\/b>\u00a0<br \/><span class=\"xn-person\">Luis Sanay<\/span>, CFA\u00a0<br \/>445-235-8386\u00a0<br \/><b><a href=\"mailto:lsanay@harmonybiosciences.com\" target=\"_blank\" rel=\"nofollow noopener\">lsanay@harmonybiosciences.com<\/a><\/b>\u00a0<\/p>\n<div class=\"PRN_ImbeddedAssetReference\" id=\"DivAssetPlaceHolder2\"><\/div>\n<p id=\"PURL\">\n        <img loading=\"lazy\" decoding=\"async\" title=\"Cision\" width=\"12\" height=\"12\" alt=\"Cision\" src=\"https:\/\/c212.net\/c\/img\/favicon.png?sn=DC77260&amp;sd=2022-09-22\" \/> View original content to download multimedia:<a id=\"PRNURL\" rel=\"nofollow noopener\" href=\"https:\/\/www.prnewswire.com\/news-releases\/harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs-301628976.html\" target=\"_blank\">https:\/\/www.prnewswire.com\/news-releases\/harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs-301628976.html<\/a><\/p>\n<p>SOURCE  Harmony Biosciences<\/p>\n<\/p><\/div>\n<p>    <img decoding=\"async\" alt=\"\" src=\"https:\/\/rt.prnewswire.com\/rt.gif?NewsItemId=DC77260&amp;Transmission_Id=202209220805PR_NEWS_USPR_____DC77260&amp;DateId=20220922\" style=\"border:0px;width:1px;height:1px\" \/><\/p>\n","protected":false},"excerpt":{"rendered":"<p>PR Newswire PLYMOUTH MEETING, Pa. , Sept. 22, 2022 \/PRNewswire\/ &#8212; Harmony Biosciences Holdings, Inc. (&#8220;Harmony&#8221;) (NASDAQ: HRMY), a pharmaceutical company dedicated to\u00a0developing and commercializing innovative therapies for patients with rare neurological diseases, today announced on the fourth annual World Narcolepsy Day, the funding recipients of its Patients at the Heart\u00a0and Progress at the Heart\u00a0award programs. The Patients at the Heart program, which launched in 2019, underscores Harmony&#8217;s ongoing commitment to support the comprehensive needs of people affected by rare neurological diseases. Over the last four years, the program has awarded numerous nonprofit organizations that are working to support and address the challenges of people living with sleep disorders and rare neurological diseases who experience excessive daytime sleepiness (EDS). In &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/www.marketnewsdesk.com\/index.php\/harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;HARMONY BIOSCIENCES ANNOUNCES 2022 FUNDING RECIPIENTS OF PATIENTS AT THE HEART AND PROGRESS AT THE HEART AWARD PROGRAMS&#8221;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-688007","post","type-post","status-publish","format-standard","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>HARMONY BIOSCIENCES ANNOUNCES 2022 FUNDING RECIPIENTS OF PATIENTS AT THE HEART AND PROGRESS AT THE HEART AWARD PROGRAMS - Market Newsdesk<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.marketnewsdesk.com\/index.php\/harmony-biosciences-announces-2022-funding-recipients-of-patients-at-the-heart-and-progress-at-the-heart-award-programs\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"HARMONY BIOSCIENCES ANNOUNCES 2022 FUNDING RECIPIENTS OF PATIENTS AT THE HEART AND PROGRESS AT THE HEART AWARD PROGRAMS - Market Newsdesk\" \/>\n<meta property=\"og:description\" content=\"PR Newswire PLYMOUTH MEETING, Pa. , Sept. 22, 2022 \/PRNewswire\/ &#8212; Harmony Biosciences Holdings, Inc. (&#8220;Harmony&#8221;) (NASDAQ: HRMY), a pharmaceutical company dedicated to\u00a0developing and commercializing innovative therapies for patients with rare neurological diseases, today announced on the fourth annual World Narcolepsy Day, the funding recipients of its Patients at the Heart\u00a0and Progress at the Heart\u00a0award programs. The Patients at the Heart program, which launched in 2019, underscores Harmony&#8217;s ongoing commitment to support the comprehensive needs of people affected by rare neurological diseases. Over the last four years, the program has awarded numerous nonprofit organizations that are working to support and address the challenges of people living with sleep disorders and rare neurological diseases who experience excessive daytime sleepiness (EDS). 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(&#8220;Harmony&#8221;) (NASDAQ: HRMY), a pharmaceutical company dedicated to\u00a0developing and commercializing innovative therapies for patients with rare neurological diseases, today announced on the fourth annual World Narcolepsy Day, the funding recipients of its Patients at the Heart\u00a0and Progress at the Heart\u00a0award programs. The Patients at the Heart program, which launched in 2019, underscores Harmony&#8217;s ongoing commitment to support the comprehensive needs of people affected by rare neurological diseases. Over the last four years, the program has awarded numerous nonprofit organizations that are working to support and address the challenges of people living with sleep disorders and rare neurological diseases who experience excessive daytime sleepiness (EDS). 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