{"id":451162,"date":"2021-03-04T15:03:10","date_gmt":"2021-03-04T20:03:10","guid":{"rendered":"http:\/\/www.marketnewsdesk.com\/?p=451162"},"modified":"2021-03-04T15:03:10","modified_gmt":"2021-03-04T20:03:10","slug":"datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy","status":"publish","type":"post","link":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/","title":{"rendered":"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy"},"content":{"rendered":"<div class=\"mw_release\">\n<p>SAN FRANCISCO and SALT LAKE CITY, March  04, 2021  (GLOBE NEWSWIRE) &#8212; Datavant, the leader in helping healthcare organizations safely connect their data, and the Cerebral Palsy (CP) Research Network, a group of doctors, therapists, and patient advocates collaborating to improve treatment and outcomes for people with cerebral palsy, announced a partnership to enable an investigation on the genetic basis of CP using Datavant technology.<\/p>\n<p>The CP Research Network will use Datavant\u2019s patient-level, privacy-protecting linking\u00a0technology to link multiple datasets across 30+ academic medical centers. A study led by\u00a0researchers at the Barrow Neurological Institute at Phoenix Children\u2019s Hospital and the\u00a0University of Utah will seek to discover new CP genes using this technology.<\/p>\n<p>\u201cData fragmentation today prevents researchers from having the complete view into a patient\u2019s\u00a0history. Our partnership with the CP Research Network will enable researchers to gain a deeper\u00a0understanding of the genetic basis of cerebral palsy, improving our understanding of this\u00a0disease and in turn, enabling faster development of therapies,\u201d said Travis May, Chief Executive\u00a0Officer at Datavant.<\/p>\n<p>A National Institutes of Health-funded study of CP genetics led by Michael Kruer, M.D., director\u00a0of the Pediatric Movement Disorders Program at Barrow Neurological Institute at Phoenix\u00a0Children\u2019s Hospital, will implement Datavant technology to link genomic mutations that cause\u00a0CP with patient characteristics in the CP Research Network\u2019s registry. The privacy-preserving\u00a0linkage will be led by Dr. Jacob Kean, Associate Professor in Health System Innovation and\u00a0Research, Department of Population Health Sciences, University of Utah. CP Research\u00a0Network was founded by Paul Gross.<\/p>\n<p>\u201cIt is an exciting time in cerebral palsy research,\u201d said Gross, President and CEO of the CP\u00a0Research Network. \u201cThis landmark collaboration will enable new breakthroughs in CP genetics\u00a0that have the potential to transform diagnosis and treatment.\u201d<\/p>\n<p>\u201cWe are proud to serve as the genomics research hub for the network as we know that easily\u00a0accessible, comprehensive data will yield better treatment options for years to come,\u201d said\u00a0Dr. Kruer. \u201cThis study represents an important advance and will couple cutting-edge genomic discoveries with real-time clinical data in order to bring precision medicine to the CP community.\u201d<\/p>\n<p>A webinar discussing the CP Research Network and how it is using Datavant will take place on\u00a0March 30 at 10 am PT. To register, <a href=\"https:\/\/www.globenewswire.com\/Tracker?data=ubigSEzy-pd7lz3RUF1Jy8YPdhkKFEVzZcC6POg1l3LizgbIpPhLVwJW6NBt9_tb2F-Aj94UdbyfGgzqBcN0NEjqR97ezfta3546NPpUiNB8jIw3jMzdkj-lSNapSRkV\" rel=\"nofollow noopener noreferrer\" target=\"_blank\"><u>click here<\/u><\/a>.<\/p>\n<p>More information on the study can be found <a href=\"https:\/\/www.globenewswire.com\/Tracker?data=FTtRvtmftTLtwKzWs_Nqt69KKcPYTX3ZjNXq9iJiDyX20D4frcQ-pLGs2u9Q4pkfGfS8lNZ-AnVQT81n1sYLc9UHuJuuU5jdyN8miJGinb8=\" rel=\"nofollow noopener noreferrer\" target=\"_blank\"><u>here<\/u><\/a>.<\/p>\n<p>\n        <strong>About CPRN:<\/strong><br \/>\n        <br \/>The CP Research\u00a0Network\u00a0is\u00a0the largest and most comprehensive collaboration of hospitals and community members\u00a0working together to\u00a0improve health outcomes for people with CP.\u00a0We host the largest community and clinical registries\u00a0in the US\u00a0to gather robust\u00a0and comprehensive data for research, and we\u00a0focus\u00a0our research\u00a0on the health and wellness outcomes that people with cerebral palsy value most.\u00a0We include the entire community\u00a0in\u00a0the\u00a0research\u00a0process,\u00a0the development of\u00a0education\u00a0materials,\u00a0and the implementation of current clinical care pathways.\u00a0<br \/>To learn more, visit us at <a href=\"https:\/\/www.globenewswire.com\/Tracker?data=du8JZZF60bcLVIP0F8qA15iNHF7Lx97KETawSnIrBcjMGyow-DmI0gEd-4dlGuRfHV_iINdWeqlV6sHeRhogMQ==\" rel=\"nofollow noopener noreferrer\" target=\"_blank\"><u>https:\/\/cprn.org\/<\/u><\/a>.<\/p>\n<p>\n        <strong>Contact:<\/strong><br \/>\n        <br \/>Cerebral Palsy Research Network<br \/>Paul Gross<br \/>Phone: 402 302-CPRN (2776)<br \/>Email: <a href=\"https:\/\/www.globenewswire.com\/Tracker?data=GagApEXBtBXrJ3iFRUtmAcDGvOemjMQNn9iOAKI2vzIraq6WHBp6xOzjnLowoZfWkZtV1PM-UJcIwp59GfNoZQ==\" rel=\"nofollow noopener noreferrer\" target=\"_blank\"><u>paul@cprn.org<\/u><\/a><\/p>\n<p>\n        <strong>About Datavant:<\/strong><br \/>\n        <br \/>Datavant\u2019s mission is to connect the world\u2019s health data to improve patient outcomes. Datavant works to reduce the friction of data sharing across the healthcare industry by building technology that protects the privacy of patients while supporting the linkage of de-identified patient records across datasets. Datavant is headquartered in San Francisco. Learn more about Datavant at <u><a href=\"https:\/\/www.globenewswire.com\/Tracker?data=K43HazjweuNwzyRcVS2Cwiyp4Hi3Cyh5SU7qHs5RsYoyaCS2i6Vqdw13sbXpfjyaTWbClhvkyStgfb0nU937Ow==\" rel=\"nofollow noopener noreferrer\" target=\"_blank\">www.datavant.com<\/a><\/u>.<\/p>\n<p \/>\n      <img loading=\"lazy\" decoding=\"async\" class=\"__GNW8366DE3E__IMG\" src=\"https:\/\/www.globenewswire.com\/newsroom\/ti?nf=ODE4NDc1MiM0MDQ5MjgwIzIyMDY3MDg=\" width=\"1\" height=\"1\" \/><br \/>\n      <br \/>\n      <img loading=\"lazy\" decoding=\"async\" class=\"__GNW8366DE3E__IMG\" src=\"https:\/\/ml.globenewswire.com\/release\/track\/ee568f28-647e-4dd4-8a16-170d3c3bbcb5\" width=\"1\" height=\"1\" \/>\n    <\/div>\n<div class=\"mw_contactinfo\">\n<pre>Contact:\r\nSarah Rowe, Head of Marketing\r\npr@datavant.com<\/pre>\n<\/p><\/div>\n","protected":false},"excerpt":{"rendered":"<p>SAN FRANCISCO and SALT LAKE CITY, March 04, 2021 (GLOBE NEWSWIRE) &#8212; Datavant, the leader in helping healthcare organizations safely connect their data, and the Cerebral Palsy (CP) Research Network, a group of doctors, therapists, and patient advocates collaborating to improve treatment and outcomes for people with cerebral palsy, announced a partnership to enable an investigation on the genetic basis of CP using Datavant technology. The CP Research Network will use Datavant\u2019s patient-level, privacy-protecting linking\u00a0technology to link multiple datasets across 30+ academic medical centers. A study led by\u00a0researchers at the Barrow Neurological Institute at Phoenix Children\u2019s Hospital and the\u00a0University of Utah will seek to discover new CP genes using this technology. \u201cData fragmentation today prevents researchers from having the complete &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy&#8221;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[],"tags":[],"class_list":["post-451162","post","type-post","status-publish","format-standard","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.5 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy - Market Newsdesk<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy - Market Newsdesk\" \/>\n<meta property=\"og:description\" content=\"SAN FRANCISCO and SALT LAKE CITY, March 04, 2021 (GLOBE NEWSWIRE) &#8212; Datavant, the leader in helping healthcare organizations safely connect their data, and the Cerebral Palsy (CP) Research Network, a group of doctors, therapists, and patient advocates collaborating to improve treatment and outcomes for people with cerebral palsy, announced a partnership to enable an investigation on the genetic basis of CP using Datavant technology. The CP Research Network will use Datavant\u2019s patient-level, privacy-protecting linking\u00a0technology to link multiple datasets across 30+ academic medical centers. A study led by\u00a0researchers at the Barrow Neurological Institute at Phoenix Children\u2019s Hospital and the\u00a0University of Utah will seek to discover new CP genes using this technology. \u201cData fragmentation today prevents researchers from having the complete &hellip; Continue reading &quot;Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy&quot;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/\" \/>\n<meta property=\"og:site_name\" content=\"Market Newsdesk\" \/>\n<meta property=\"article:published_time\" content=\"2021-03-04T20:03:10+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.globenewswire.com\/newsroom\/ti?nf=ODE4NDc1MiM0MDQ5MjgwIzIyMDY3MDg=\" \/>\n<meta name=\"author\" content=\"Newsdesk\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Newsdesk\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/index.php\\\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\\\/#article\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/index.php\\\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\\\/\"},\"author\":{\"name\":\"Newsdesk\",\"@id\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/#\\\/schema\\\/person\\\/482f27a394d4fda80ecb5499e519d979\"},\"headline\":\"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy\",\"datePublished\":\"2021-03-04T20:03:10+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/index.php\\\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\\\/\"},\"wordCount\":577,\"image\":{\"@id\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/index.php\\\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/www.globenewswire.com\\\/newsroom\\\/ti?nf=ODE4NDc1MiM0MDQ5MjgwIzIyMDY3MDg=\",\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/index.php\\\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\\\/\",\"url\":\"https:\\\/\\\/www.marketnewsdesk.com\\\/index.php\\\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\\\/\",\"name\":\"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy - 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The CP Research Network will use Datavant\u2019s patient-level, privacy-protecting linking\u00a0technology to link multiple datasets across 30+ academic medical centers. A study led by\u00a0researchers at the Barrow Neurological Institute at Phoenix Children\u2019s Hospital and the\u00a0University of Utah will seek to discover new CP genes using this technology. \u201cData fragmentation today prevents researchers from having the complete &hellip; Continue reading \"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy\"","og_url":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/","og_site_name":"Market Newsdesk","article_published_time":"2021-03-04T20:03:10+00:00","og_image":[{"url":"https:\/\/www.globenewswire.com\/newsroom\/ti?nf=ODE4NDc1MiM0MDQ5MjgwIzIyMDY3MDg=","type":"","width":"","height":""}],"author":"Newsdesk","twitter_card":"summary_large_image","twitter_misc":{"Written by":"Newsdesk","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/#article","isPartOf":{"@id":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/"},"author":{"name":"Newsdesk","@id":"https:\/\/www.marketnewsdesk.com\/#\/schema\/person\/482f27a394d4fda80ecb5499e519d979"},"headline":"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy","datePublished":"2021-03-04T20:03:10+00:00","mainEntityOfPage":{"@id":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/"},"wordCount":577,"image":{"@id":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/#primaryimage"},"thumbnailUrl":"https:\/\/www.globenewswire.com\/newsroom\/ti?nf=ODE4NDc1MiM0MDQ5MjgwIzIyMDY3MDg=","inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/","url":"https:\/\/www.marketnewsdesk.com\/index.php\/datavant-and-the-cerebral-palsy-research-network-announce-partnership-to-enable-investigation-of-genetic-basis-of-cerebral-palsy\/","name":"Datavant and the Cerebral Palsy Research Network Announce Partnership to Enable Investigation of Genetic Basis of Cerebral Palsy - 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